It is often the first line of attack before other more aggressive therapies are added such as methotrexate or rituximab that have bigger impacts on the immune system. I had almost (but not quite) forgotten what these aches and pains feel like, but they're back…I am re-acquainting myself with those symptoms that it tames: the overall flu-like and feverish feeling -- aka malaise -- and joint pain." (Click here to read more). I had a similar experience when I stopped taking plaquenil. Hydroxychloroquine nutrient interactions Chloroquine phosp hat e Your doctor may be against it but can he/she give you an advisable weaning plan? It sounds like you're doing a good job of it yourself, but I would say go very slowly off of it. Plaquenil takes a long time to build up in your body and therefore also will take awhile to really leave your body as well. Did you take yourself off Plaquenil, or did your doctor tell you to go off it? And as far as the vision issue goes, toxicity causing vision loss is very rare if you are on the right dose for your height and if you get regular eye exams. Dec 19, 2017 What this shingles vaccine means for RA. However, my rheumatologist has now recommended that I receive a shingles vaccine. My eyes got a little large when she told me this. “There’s a new vaccine that doesn’t contain a live virus,” she stated. My response was — “wow, now that’s news to me!” My joint and muscle pain went up and my energy levels went down. No, but it did alleviate some of the symptoms and improve my quality of life. It was one of those situations where I didn't realize the medication was having such an impact until I stopped it. If i go off plaquenil can i go back on What is the correct way to discontinue use of plaquenil?, Had to stop taking Plaquenil - Hydroxychloroquine in dogsPlaquenil memory lossJohn hopkins research on plaquenilPlaquenil classification I’ve heard that for some, you can’t go back on as it will no longer be effective once totally off. I think I’ve been lucky to be able to get back to good results within a couple of days after starting up again. I think tapering off over a month or so would be fine, but I would NOT go cold turkey on this one. Want to taper off Pristiq, makes my heart race Mayo Clinic.. New Shingles Vaccine Great News for RA Community.. Study Raises Questions about Sjogren's and Plaquenil. Lynwood, I can't answer your question about weight gain or loss on plaquenil but I did go off plaquenil a few months ago and haven't been the same since. I regret the decision which had I made because I'd felt pretty well for quite some time and was doing my best to slowly get off as many meds as possible. Feb 09, 2012 It may be you mentioned a side effect that you were not aware of is why he stopped this med. I understand it can take up to 6 months to start helping, & would agree without it you could have the same pain from your Lupus as before. You should pin down your doctor with a list of questions about what is going on & ask why you were taken off of it. If you are pregnant or considering becoming pregnant, discuss Plaquenil with your doctors. Though Plaquenil is generally regarded as safe during pregnancy, it is recommended that effective birth control is used throughout the course of Plaquenil treatment and for up to six months after treatment is stopped.